Fail. No diagnosis.

So, we go forward with more testing. Whole genome and RNA sequencing.

It seems Luca doesn’t want to be pigeon holed. Wants to be unique. Possibly wants his condition named after him?! Such a diva.

This week has been rough, mentally. I’ll be back to psychologist ASAP. But for now, I’ll be having a couple of margaritas and tears.

Having that feeling of being trapped. I feel chained to my sick son and no idea if I’ll ever be unchained. Ever be me. Ever have dreams and a future for me. Ever have answers. I am more than this, but I’m stuck.