The opposite to having a fantastic support network, there are some areas in life, where, having a child with a disability can make you feel like you’re a burden. By nature, I do everything in my power to NOT be a ball breaker to friends, family or even strangers. So, when someone or a business makes you feel like, you having a child with a disability is hard work for THEM, its the absolute pits. The situation is out of MY control. We need to live our lives, and hope that others CAN help us get through it as normal as possible. I won’t name names or types of businesses that have let us down- it does not benefit anyone but there is a big one in my life, that I am so pleased to be moving on from. It has been such a stress for me over the past 4 months. I have not felt welcome and I guess rejected.

Recently I shared a story on my Facebook page about a mum, who has a child around Luca’s age, who was let down by an airline. They tried to slump this  boy (who is quadriplegic) in a “normal” toddler stroller (which was someone elses). This is just an example of what can happen to people who have disabilities. They’re made to feel like it is THEIR problem to sort out. As if they are the burden.

Inexperience is one of the major factors. The answer going forward is better education for people in customer service/face to face roles especially. (Or maybe teach it in schools?! ) They really need to show compassion, without pity. Really recognise that WE don’t want to be a problem. We just want what everyone else has. Without hassle. Without feeling like a burden.