It’s been a while since the last post and thats because Luca has been pretty “boring”. Boring is a good thing to be in the medical world, because it means he has been relatively healthy. No hospital admissions and only a short period of time where he was randomly throwing up.

In February, we celebrated a huge milestone- Luca turned 10! We had a party for him (which I vowed to be my last kids birthday party!) and he was happy to show off his walking skills all over the tennis court. Later in the month, as part of his birthday present (thanks fam & friends), Luca and I spent a night away together in Lorne. He took the master bedroom, with the ocean view, while I slept in the lounge room on the sofa bed. We had a wonderful time- even though Luca’s cherry tomatoes on his pizza were stolen by a kookaburra when we ate outside. We spent a lot of time in the indoor pool and minimal time at the beach (Luca is not a fan of sand).

Sadly, I received a phone call from our Genetic Counsellor, as a courtesy call to confirm, that they still have not got a confirmed diagnosis for Luca as yet. They will continue to keep trying, but I might not hear from them for another 2 years.

In better news, Luca’s most recent hip xray shows that his hips are still improving and looking as they should. The more he walks, crawls or is standing upright, the better the bones will remain in place, as they should be, without the need of surgery!

At school, there was a bit of a hiccup at the start of his Middle School years. He was placed in a class with students a bit more advanced to him. My normally chill and smiley guy, became the very anxious, yelling and screaming type in class. 😦 While speaking to his teacher, I was so sad, because Luca LOVES going to school. After speaking with his teacher and coordinator, it was decided he would go back into a class that suited his learning style (slow and fun). He is back to walking in his walker a lot more- rather than doing book work. he has the job of returning the roster to the office. He seems alot more happier- at school and home. His teacher has just told me that he knows the letter of his first name…she’s now going to work on the next letter. The other most exciting thing, is that she knows (now I know), that his favourite colour is blue. He is obviously grabbing blue things and pushing away other things.

So, 10 years on, we’re still in limboland… but he is boring and we are surviving. I’m so proud of the little guy and how far he is coming. I think of the younger him and me 9 years ago. What a hellish landscape it was. Never, did I think we would be here. Never did I think I’d be getting these huge, strong, bear hugs from my guy. I am so lucky to be “stuck” in this limboland for longer with him.